SMA drug Zolgensma finally makes Alberta's Rare Diseases Drug Coverage Program
Coverage for Zolgensma, a gene therapy used to treat spinal muscular atrophy, is now permanently available in Alberta.
The therapy was added to the province's Rare Diseases Drug Coverage Program after the pan-Canadian Pharmaceutical Alliance (pCPA) reached a long-term pricing agreement with manufacturer Novartis Pharmaceuticals Canada Inc. in October.
Alberta Health Minister Jason Copping said in a statement the government was "extremely pleased" at the development and Alberta's new ability to offer the treatment on a more secure basis.
The province had been providing access to the drug on its own pending a national drug review, approval and the price negotiations with Novartis.
Zolgensma, a one-time treatment with a price tag of $2.91 million, is administered by intravenous infusion to replace a missing or faulty gene that results in spinal muscular atrophy (SMA). The rare disorder can cause a loss of muscle function and is seen in about one in 10,000 Canadian babies each year, according to the National Organization for Rare Disorders.
Zolgensma is supposed to stop the disease's progression and restore protein production of the missing or defective SMN1 gene. It must be administered when a patient is a toddler.
Several Alberta families led the push to have it approved and covered in Alberta and Canada.
Spinraza, a spinal injection given three times a year that can be used as a treatment for SMA, is also covered under the Alberta Drug Benefit List.
CTVNews.ca Top Stories
CRA no longer requiring 'bare trust' reporting in 2023 tax return
The Canada Revenue Agency announced Thursday it will not require 'bare trust' reporting from Canadians that it introduced for the 2024 tax season, just four days before the April 2 deadline.
He didn't trust police but sought their help anyway. Two days later, he was dead
Jameek Lowery was among more than 330 Black people who died after police stopped them with tactics that aren’t supposed to be deadly, like physical restraint and use of stun guns, The Associated Press found.
Fluid in eye cells can 'boil' if you watch the eclipse without protection: expert
Millions of people in parts of Eastern and Atlantic Canada will be able to see the rare solar eclipse happening on April 8. But they should only look up if they have proper eye protection, experts say.
Ontario urges mpox testing amid spike in cases
Ontario health officials are urging public health units to test for mpox, the viral disease formerly known as monkeypox, amid a spike of confirmed cases in the province.
More unauthorized products for skin, sexual enhancement, recalled: Here are the recalls of this week
Health Canada and the Canadian Food Inspection Agency recalled various items this week, including torches, beef biltong and unauthorized products related to skin care and sexual enhancement.
Where is the worst place for allergy sufferers in Canada?
The spring allergy season has started early in many parts of Canada, with high levels of pollen in some cities already. Experts weigh in on which areas have it worse so far this season.
Do these exercises for core strength if you can't stomach doing planks
Planks are one of the most effective exercises for strengthening your midsection, as they target all of your major core muscles: the transverse abdominis, rectus abdominis, external obliques and internal obliques. Yet despite the popularity of various 10-minute plank challenges, planking is actually one of the most dreaded core exercises, according to many fitness experts.
Grandparent scam: London, Ont., senior beats fraudsters not once, but twice
It was a typical Tuesday for Mabel Beharrell, 84, until she got the call that would turn her world upside down. Her teenaged grandson was in trouble and needed her help.
'Don't expect any deals:' Expert says stores may not offer steep discounts on post-Easter chocolate
Those looking to snap up cheap treats at their local grocery store next week following the Easter long weekend could be in for a bit of a surprise as the rising cost of cocoa continues to drive up the price of chocolate, one expert says.